In 2003 and 2004, two circulars will define the specifications for the creation of 17 SLA centers in France. It's a unique organization for France and for ALS in the world.
A budget is allocated to the centers according to the number of patients followed, allowing the Montpellier center to count to date 15 professionals, full-time or part-time, who are involved in the multidisciplinary consultation.
SLAs have multiple goals :
- rapid management of ALS patients for early diagnosis
- multisiciplinary care, optimized, in close contact with local carers
- caregiver training
- the search
The action of the SLA centers is coordinated by the Paris center and common procedures make it possible to make the methods of care between the centers as reproducible as possible.The Montpellier Center has been working on ALS since 1988. Every year around 100 new patients are cared for and nearly 300 people are followed every 3 to 4 months on average.
Trainings were organized for health professionals in and out of the hospital.
The research carried out within the SLA center addresses several aspects:
- a DNA library of patients with familial forms but also sporadic forms, has been created and coordinated by Montpellier, since 1996. This bank has made significant advances in the field of genetics, in collaboration with all the UHCs, for the collection, and, for the identification of genetic factors, with genetic centers like those of Montreal (Pr Guy Rouleau) and Tours (Dr. Corcia, Pr Andrès).
- The epidemiology of ALS, looking for risk factors for the disease by studying areas such as hyperactivity, the role of cholesterol or diet
- the clinical study of different forms of ALS, to try to understand why certain forms are particularly slow (more than 10 years) and others if evolutionary (less than 6 months)